The Doctor is Out…..

the doctor is outNo worries – he’s back already!  Dr. Kline shares with us his personal experience as a surgical patient and what he has learned from being on the other side of the exam table that will enhance the personal care of his own patients.

“The Doctor is Out” is part 1 of this 4 part series.  Enjoy and have a happy day! – Gail

Three weeks before my surgery, everything was fine. I felt good, a little heavier at 56 than at 26, but still hale and vigorous. Then, while operating late one afternoon, I felt a pain in my groin. “Probably just too much strenuous exercise,” I thought, and dismissed it. It didn’t go away. The next day, it was worse. I felt a bulge. DAMN. I had a hernia.

The whole concept of needing to get treatment, instead of needing to deliver it, was foreign and unsettling. For decades I’d been used to helping other people. Now, whether I liked it or not, I was potentially going to have to sit down and let others help me.

I called the same general surgeon who fixed my 86 year old Dad’s hernia last year (why did mine have to come 30 years sooner?). He told me there was no danger in watching the hernia for a while, and that if I wanted to try and lose some weight it might get better, but it was a long shot.  As it turned out, I didn’t actually have time to try and lose weight, because it started to get worse hurt towards the end of long workdays. I turned over all my long cases to my partner, and I started looking for the soonest, least disruptive time I could find to get it fixed.

I greatly respect the people I work with daily, but I didn’t want to have surgery at the hospital where I usually worked, because I wanted things to be as routine as possible for everyone. I felt that it would be much less stressful on me (and probably everyone else) if I wasn’t in an environment where I was used to giving the orders.

Fortunately for me, my wife is a surgeon, and she regularly works at a hospital I rarely visit. I thought this might be the best place to go – my wife could kind of “watch over” things, but I would not know anyone involved in my care personally.

When I visited the surgeon for my preoperative appointment, he examined me and confirmed that I did in fact have a hernia.  We discussed options, and decided to attempt a laparoscopic repair of the hernia. He advised me that it might turn out that it was too difficult to do the surgery laparoscopically, and that they might have to “open me up.” I assured him that after 20+ years of practicing surgery, I was well aware that things are not strictly predictable, and I asked him to please do whatever he felt he needed to at the time. This was the first time I started to “loosen up” a little bit, and I was actually kind of glad that it would be him, and not me, worrying about the details in surgery that day.

I also found out in his office that I had high blood pressure, for which they put me on medication. I began to limit my salt intake, and cut back on calories. Fortunately, jogging did not aggravate the hernia, so I also increased my aerobic exercise until two days before surgery. Yes, I was “in training” for this.

On the night before surgery, I went to bed early, woke at 2 a.m., and didn’t sleep the rest of the night.

(Part 2 of this series will post April 16)

 

In Her Words: Liz Munn’s Story of Survival

The Center for Natural Breast Reconstruction is so proud to publish this moving article featuring Liz Munn, a breast cancer survivor who’s passionate about educating others about breast cancer and finding funding for uninsured women. Thank you, Liz, for sharing your story with the world.

You’re coming up on the first anniversary of your breast cancer diagnosis, tell us about your year.
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I learned a great deal about myself this year. I have come to appreciate the things that are important to me a little more, and of course that includes my family and friends. I think this year taught me not to waste time with things that aren’t as important as others. It provided with me focus and gave me strength I didn’t know I had.

How do you feel like a collaborative team of physicians/surgeons was important to your recovery?

This process takes dedication. I would say that’s also the perfect word to describe this team. There is nothing easy about the process and it can be trying. But this team was dedicated to seeing a successful outcome for me from the start. No question was too small, and they supported me the entire way through. I can’t say enough about how well I was treated and supported by everyone involved. My husband and I are so thankful to have had that type of support. I appreciated being able to see the entire team at one location; it helped when I was recovering and my energy was a hot commodity.

Did you speak to anyone who had reconstruction prior to choosing your procedure?  Did you find this helpful?

When I was diagnosed, it was overwhelming for me. My sister worked with a patient of Dr. Craigie’s and we had several long conversations about the procedure. She had a complicated case. Her treatment involved multiple surgeries and some delays with reconstruction for treatment options. Even after all she had been through she still felt this was the best option for her. She was very supportive and understanding of the difficult decisions that I needed to make for myself. My main concern was for my long-term results and the best possible outcome. With the risks and benefits of reconstruction in mind, I knew it was the right decision for me. The success rate for natural reconstruction was extremely high and I was a good candidate for the surgery. I was so glad to have others (who had been through the surgery) to talk to, and it was a huge comfort for me.

You, like many of our patients, feel a need to give back.  We understand your passion is promoting the importance of screening mammograms and finding funding for those who might be uninsured, what’s your plan to get the word out?

I believe everyone has a gift, and my gift is helping people grow their businesses. I plan to hold an annual training webinar through my website with all proceeds going to Lowcountry Komen. I was so fortunate to have great health insurance and live in a place that has amazing healthcare available, but not everyone is in that situation. I believe that mammograms and available choices for treatment and reconstruction are the most important things women can receive from her health provider. However, many women are afraid to see a doctor or don’t understand the process. Knowledge and choice are truly powerful things, and I know that Lowcountry Komen supports these ideals.

I am also willing to discuss my personal journey with anyone at any time. Sometimes seeing that it is possible to get better, and knowing that it does get easier, gives you the courage and energy to take care of yourself.

20 Stories of Famous Cancer Survivors

<img src="image.gif" alt="A pink ribbon" />You’ve read the stories of cancer survivors and marveled at their strength, resilience, and confidence. We’ve collected 20 of their stories here, and we hope you enjoy them.

Actress Christina Applegate had a double mastectomy after a cancer diagnosis in 2008. She has started her own cancer foundation.

Bicyclist Lance Armstrong’s testicular cancer spread to his lungs and brain. He was given only a short time to live, but he went on to live and win the Tour de France seven times.

Actress and director Kathy Bates privately fought ovarian cancer 10 years ago and won.

Just two months ago, newsman Tom Brokaw found he had multiple myeloma. He is currently being treated at the Mayo Clinic.

Actor and director Robert DeNiro successfully fought prostate cancer with surgery 11 years ago.

TV doc Drew Pinsky was diagnosed with prostate cancer in 2011 and underwent a robotic prostatectomy last summer.
After two years of misdiagnoses, actress Fran Drescher was diagnosed with uterine cancer in 2000. In typical Fran fashion, she founded Fran Drescher’s Cancer Shmancer Foundation.

Late last year, actor Hugh Jackman had a basal cell carcinoma removed from his nose.

Actor Michael C. Hall was told he had Hodgkin’s lymphoma four years ago and is now in remission.

Actress Valerie Harper has beaten the odds. She was told in March 2013 that she had a rare form of brain cancer and was given three months to live.

News anchor and “Today Show” cohost Hoda Kotb has been breast-cancer free since 2009.

In 1995, actor Mr. T was found to have a rare type of T-cell lymphoma. He is in remission.

Diagnosed with breast cancer 8 years ago, actress Cynthia Nixon quietly fought it and is now an ambassador for the Susan G. Komen for the Cure.

Singer Ozzy Osbourne’s wife Sharon was diagnosed with colon cancer in 2002. After chemo and surgery, she is now cancer free and has started the Sharon Osbourne Colon Cancer Program.

Former Secretary of State General Colin Powell was found to have prostate cancer last year and underwent surgery last December.

News anchor Robin Roberts has been free of breast cancer for over five years.

Actor Richard Roundtree was diagnosed with breast cancer, a rarity among men. He has been cancer free since 1993 after undergoing a double mastectomy and chemotherapy.
Actress Cybill Shepherd’s doctor found a melanoma on her back 12 years ago, and she was successfully treated.

Actress Suzanne Somers beat breast cancer with a lumpectomy and radiation.

Broadway actress Marissa Janet Winokur found she had cervical cancer while she was starring in the Broadway musical “Hairspray.” She beat it and went on to have a baby via surrogate.

Who have we missed? Let us know below!

In Her Words: Deidre Dixon

The Center for Natural Breast Reconstruction is so proud to publish this moving essay from Deidre Dixon, survivor and a source of inspiration. Thank you Deidre for sharing your story with the world.

Today is the 1-year anniversary of the first in a series of 4 surgeries I underwent last year to reduce my risk of breast cancer and to be reconstructed using my own tissue. The (most likely) final surgery was December 6, although nothing compared to the initial one, which involved arterial grafting, lasted 12 1/2 hours and included a visit to ICU.

Now, one year out, with a risk level at 3% rather than 62, I can’t help but reflect on the incredible year that has just ended. When people spoke at Thanksgiving of the many things for which they were thankful, I realized there were many little things I previously took for granted which I had never considered as being worth the slightest attention. That has all changed.

I will never think of those think of these most basic things as being less than a blessing. And I feel that I should, in celebration of having reached this point, mention a few.
I am thankful for being able to:

1. Pull open a door on my own
2. Take a bath
3. Take a walk
4. Raise my arms above 45 degrees
5. Reach up or bend down to get something off the floor
6. Drive a car
7. Use my hands to support my weight
8. Do anything without being absolutely exhausted
9. Zip my own zipper when it is in the back, or
10. Pull anything over my head or spend an inordinate amount of time selecting my clothes based on whether I can actually put them on by myself

I hope I never forget what a gift that even the most basic things can be, when you suddenly are without them. And I hope I never forget what a blessing my friends are and have been throughout this experience.

Happy Holidays From All of Us!

Our doctors and staff at the Center for Natural Breast Reconstruction wish you a merry Christmas and holiday season!

It is such a joy to have friends, former patients, and current clients reaching out to us during this time. We hope your week is filled with warmth and cheer for a healthy new year!

 

In Her Words: Shirley Nilsen

This week we’re happy to highlight Shirley Nilsen’s story for In Her Words. Shirley, a breast cancer survivor, spearheads an initiative for East Cooper Medical Center, where volunteers  provide plush essential care bags to post-surgery breast reconstruction patients. She reminds us that even the smallest gestures of kindest go a long way.

East Cooper Medical Center Care Bags

This is an incredible initiative and it’s managed by all volunteers! Tell me a little more about the initiative, why it was created and what it means to you.

We were approached last year by the Center for Natural Breast Reconstruction to see if our Volunteer Services Organization, a non-profit entity that provides scholarships for students going into the medical field, medications for patients who need financial assistance, and donations to charities in the East Cooper area, would be interested in providing basic essentials to breast reconstruction patients upon discharge. 

The Center for Natural Breast Reconstruction held a fund-raiser and $2167 was raised, with 20% of the money going to The Plastic Surgery Foundation Breast Reconstruction Awareness Fund.  The remainder was donated to the VSO, who put together bags to give to any patient of any physician who had breast reconstruction at East Cooper Medical Center.   

What items are included in post-op care bags for reconstruction patients? 

4” x 4” Gauze Sponges, 2 packs of warm, fuzzy non-skid socks; pink-ribbon pin; pink-ribbon manicure set; pink-ribbon pen and pad set; pill box; travel mirror. 

Do you have any stories from you or a loved one about breast cancer survival or wellness? 

I am a breast cancer survivor and have had reconstruction.  Although my surgery was over 10 years ago, I still remember the feeling of thinking “will I still feel like a woman, will I be perceived any differently because I have had my breast removed and how will my reconstruction look.  I was very lucky that I had the support of my husband, family and friends.  Unfortunately, all women do not have that support and my heart truly hurts for those women.  The volunteers want women to know that they care.  There is a note in the bag from the volunteers which says:

The Volunteers at East Cooper Medical Center would like to present this lovely tote bag and the little gifts inside to show their support for you as you recover from your surgery.  The funds to purchase these items came from a fundraiser in October, 2012 whose purpose was to show support for women undergoing breast reconstruction surgery.  We hope you find these items useful and we wish you a speedy recovery.

 How can people support this ongoing project?

People can make a donation to the Volunteer Service Organization at East Cooper Medical Center, 2000 Hospital Drive, Mt. Pleasant, SC 29464, designating that their donation go to the “Breast Reconstruction Fund”.  

You’re Not Alone: The Best of “In Her Words”

As we enter October, Breast Cancer Awareness Month, it’s more important than ever to make sure the message is clear: You are not alone.

Every day, walking among us, are women who just received their diagnosis, who just underwent their first biopsy or their first radiation treatment, who just met with a doctor they will see for many years as they fight for their lives, who just scheduled their first surgery or their reconstruction.

There is a saying, “A woman is like a tea bag…you never know how strong she is until she’s in hot water.”

That’s why we are so proud to present this archive of In Her Words guest blogs.

These women have gone through tremendous challenges to overcome cancer or stand up for those who are breast cancer survivors or current patients. We hope these stories give you comfort, inspire you, and show you that you are not alone. Feel free to share these with the loved ones in your life, too, and don’t hesitate to contact our Center if you are seeking breast reconstruction information or options.

From Our “In Her Words” Archive:

With love and support,

The Center for Natural Breast Reconstruction

 

Celebrate BRA Day October 16!

 National Breast Reconstruction Awareness Day, or BRA Day, is October 16, 2013 during Breast Cancer Awareness Month.

BRA Day promotes awareness and education about post-mastectomy breast reconstruction. Jewel, the singer and songwriter, is the national spokesperson for BRA Day and has written a song to benefit patients, “Flower.”

Many women do not know of the various options regarding breast reconstruction, which is a topic that isn’t discussed as much as breast cancer is. Studies have shown that less than a quarter of women know the options they have in breast reconstruction, and even fewer know about the proper timing of cancer treatment and reconstruction surgery and the variability in outcomes.

BRA Day USA supporters help spread awareness of breast cancer treatment and the plastic surgeon’s role in breast reconstruction. Supporters help educate about surgery and financing options. The goal is a broader understanding of the options available to women after mastectomy.

If you would like to start BRA Day event in your area, there is no fee, and you will have a free BRA Day Starter Guide and Marketing/PR Toolkit to help you plan your BRA Day activities. The only limit is your imagination.

Examples of past BRA Day events include:

  • Art contests
  • Seminars or panels by plastic surgeons and insurance agents
  • Flash mob
  • Fundraising events and raffles to support the BRA Fund
  • A “Show and Tell” event in which women can see what live breast reconstruction looks like

To learn more about BRA Day, visit http://www.bradayusa.org/, and watch our website (or sign up for our newsletter) for more information about how we plan to commemorate the day here in Charleston!

Join Us at the SHE Event on September 27-29th

A celebration of everything woman, SHE is three days of events just for her!

Plenty of style, food, entertainment, arts and crafts, shopping, and healthy living.

The Center for Natural Breast Reconstruction will attend, and we’ll be at booth #858. Stop by and say hi!

Located at the Charleston Area Convention Center at 5001 Coliseum Drive in North Charleston, SHE opens at 10 a.m. each day and runs through 8 p.m. Friday, with an opening night party beginning at 5:30. Saturday’s hours are 10 a.m. to 6 p.m., and Sunday’s hours are 11 a.m. to 5 p.m. Tickets are $8 for adults, $4 for children, and $5 for military and college students with ID. A two-day pass is $12, and the group discounted rate for 10 or more is $5. Parking is free.

Events include:

  • A fashion show for mothers and daughters on Sunday at 2 p.m.
  • Wine and cocktail tastings Friday and Saturday from 3 p.m. to 6 p.m. and Sunday from 2 p.m. to 5 p.m.
  • A workshop on how to use color effectively in your home on Saturday at 2:30 p.m.
  • Various hands-on workshops with local artisans all three days
  • A heart health survey from Trident Health, available throughout the event
  • And much more.

Sponsors for the event include Girl Go Lightly, Center for Women, Style for Hire, and Charleston Magazine. Close to 100 vendors will be at the event and include Aloette Cosmetics, Bits of Lace, Christian Royal Pottery, Healthy Home Foods, Vintage Affair Studio, and Kangen Water.

What are you most looking forward to?

Gift of the Present: An Interview with Heidi Sermersheim

Heidi Sermersheim

Heidi Sermersheim is an absolute inspiration to our team at the Center for Natural Breast Reconstruction. Dr. James Craigie wrote a recommendation letter on behalf of Heidi for her Cancer for College scholarship application, and Heidi was selected as the recipient! She received funds to continue her education, and we are so proud of her! Take a few moments to read her inspiring interview, and feel free to share this story with the loved ones in your life.

Congrats on your recent scholarship! Tell us a little about your award and what it means to you personally.

Thank you!

In April  I received a generous regional ‘Carolina’ scholarship of a one-time $1000 donation through Cancer For College for the 2013-2014 academic year.  I am significantly humbled to receive this honorable scholarship award, and deeply appreciative for the financial support.  I plan to use this scholarship to help cover the additional expenses beyond the initial tuition costs, while continuing my education in Human Services at Southern Wesleyan University. Without the generosity of scholarship patrons like this, there would be many students, much like myself, struggling to meet various educational expenses. 

Tell us a little bit about your story and how you survived through breast cancer?

There were five children in our family, four girls and a boy. By birth order, Gail was second to the oldest and I was the youngest. Despite the age difference of 14 years, we were connected genetically, shared a spiritual bond, and had become the best of friends.

In 2004 Gail was diagnosed with breast cancer. At that time, she was forty-eight years old. Gail was a nurse, so she began to strongly encourage the women in her life to obtain a mammogram. Her persistent encouragement inspired me, and I, reluctantly, scheduled my first and consequently the last mammogram of my life. Two weeks later the results of my mammogram revealed suspicious spots in need of biopsy. Within three months further tests had revealed that I too, had the most aggressive form of what is classified as ‘triple negative’ (high grade – ER/PR-negative, HER2Neu negative) infiltrating ductile carcinoma breast cancer.

I found myself following behind my sister, stepping carefully in her footprints, mapping out my own cancer treatment and surgery. Soon, Gail and I were side-by-side in our journey, as our bi-weekly chemotherapy appointments were only offset by one week of each other. After six months of treatment, we were blessed to have 2 years of remission.

Unfortunately, her cancer returned with a vengeance in 2006 and sadly, Gail passed away. Gail’s compassion for life, desire to mentor, and willingness to share her experiences provided me with a heightened appreciation for the “gift of the present.”

Did you have breast reconstruction surgery? If so, what type of breast reconstruction did you have? Would you recommend it to other women who might be contemplating natural breast reconstruction?

Yes, after my diagnosis and meeting with multiple physicians, oncologist and plastic surgeons along with a significant amount of research; I chose to have bi-lateral skin-sparing mastectomies, with immediate DIEP reconstruction. I was blessed to discover Dr. Craigie and Dr. Kline of the Center for Natural Breast Reconstruction. Their office staff graciously coordinated the details of my surgery. The overall attention to detail, kindness and care which I received from Dr. Craigie and his professional staff was absolutely priceless. I simply cannot express the impact this has made on my life, during treatment and my recovery. Not only would I recommend this procedure to other women, I have recommended it and will continue to do so.

What is the one thing you want all women to know about breast cancer?

First and foremost, aggressive breast cancer among young women is on the rise in America. One of the best ways for detection of breast cancer is through a mammogram, in my case, my first and last mammogram saved my life!

Upon receiving a breast cancer diagnosis, become your own best advocate by asking questions (remember there are no ‘dumb’ questions) and seeking out answers. Knowing all the surgical and reconstruction options is very important in making an informed decision.

I must add that, during this journey, I became significantly aware of the importance in human compassion during cancer diagnosis and treatment. When diagnosed with breast cancer, women often experience a feeling of their womanliness being robbed by breast cancer surgery and treatment. Flap reconstruction procedures are better than former surgical reconstruction options. However, in my opinion DIEP is the gold standard of reconstruction because it provides the least problems, offers a faster return to normal activities, and has a better long term surgical outcome than most other reconstruction options available.

 

You have achieved so much and given back since being diagnosed with cancer. What is next for you in life?

Surviving the diagnosis of breast cancer has helped to clarify my personal worldview and pinpoint my calling in life to serve others. In doing so, I am currently enrolled in a bachelor’s degree human services program, with aspirations to complete a graduate degree in social work, counselor education or youth development leadership. I plan to combine my degree with my life experience, in order to advocate, mentor, and assist people by teaching and helping with navigating higher education and oncology healthcare systems. By obtaining a bachelor’s degree in higher learning, I believe that my life will be enriched and I will be better prepared to fulfill this mission.

The journey of life and learning continue to propel us forward and provides opportunities to examine our mirrors of reflection introspectively and reflectively. All-the-while, our heart’s motive is revealed to us and becomes better illuminated and more transparent with time. I am forever grateful to live on my sister’s coattail, because my cancer diagnosis helped me blaze my life’s pathway. It is through her death and my battle with breast cancer that I have grown into a better person with an intimate knowledge of God’s grace, love and mercy. Overall, the ‘gift’ of breast cancer has bestowed upon me a ‘bucket list’ of goals, higher aspirations, and provided multiple opportunities to give back. Indeed, I am blessed.

For more information about me, please feel free to explore my website: www.heidiwalkersermersheim.webnode.com