New Surgery Performed to Help Cure Lymphedema Resulting from Breast Cancer Treatment

breast reconstructionA recent New York Times article discussed an amazing breakthrough in breast cancer treatment: curing lymphedema by transferring lymph nodes from other parts of the body.

Lymphedema is obstruction or swelling of the lymph nodes and is commonly caused by mastectomy with surrounding lymph node removal. As lymphatic drainage of the arm flows through the axillary (armpit) area, removal of lymph nodes there causes arm soreness and swelling because lymphatic fluid cannot move or drain normally.

The procedure, autologous vascularized lymph node transfer, replaces the missing lymph nodes with a small number of nodes from another area of the patient’s body, such as the groin. Surgeons must be careful not to harvest too many nodes from any one part of the body, or they risk causing lymphedema in that area.

The riskiest part of the surgery is removing scar tissue to make room for the new nodes and to improve lymphatic drainage. Critics say removing this tissue may affect the blood vessels and nerves in the arm. However, women with lymphedema often report that dealing with soreness and swelling is worse than coping with the cancer. Proponents of the surgery note that doctors often overlook the physical and emotional effects of lymphedema.

As the controversial surgery is still considered experimental, it is typically reserved for patients who do not respond to other treatments. The procedure’s classification as experimental means it is rarely performed in the United States, and insurance is not likely to cover its high cost. While proponents say it cures some patients and improves the lives of others, opponents counter that its results are inconsistent—it works for some and not for others.

A French physician, Dr. Corrine Becker, is the pioneer of the procedure, and claims a high success rate in Europe and other areas of the world. The surgery gives hope to patients with congenital lymphedema as well as cancer. A double-blinded randomized clinical trial of lymph node transfer will begin in the near future to collect more data on its effectiveness.

Doctors from The Center for Natural Breast Reconstruction observed Dr. Becker during two trips she has made to the United States, and they participated in the meeting and live surgery symposium discussed in the article.

Click here to view the New York Times article.

Step Two in Quitting Smoking: Pick a Time to Stop

quit smokingIf you’ve read the First Step in Quitting Smoking post, (link to first smoking post) you know why you want to quit. Now it’s time to take that step and do it.

Have you decided how you want to quit? You have several options, including pharmaceutical aids such as nicotine replacement therapy or Chantix, hypnotherapy, laser therapy, a telephone quitline, and cold turkey. Any of these methods can work, but only you know what is likely to work for you, based on your previous quit attempts. If you’re not sure which way you want to go, call your state’s quitline, or talk to your doctor.

Once you’ve decided how and why you want to do it, when are you going to do it? If you wait for the perfect time, it may never come. On the other hand, most smokers can remember a time when their minds or bodies were screaming it was time to quit, and they ignored those signals. If a signal comes to you in the middle of the night or while you’re driving home, get rid of those cigarettes immediately, and let that signal be the first moment of your quit.

There’s a reason your mind and body are telling you to quit at that moment—don’t ignore it.

Should you set a quit date?

If you call a quitline, they will ask you to set a quit date so you’ll commit to quitting. Some people question whether that is a good idea. The answer to that is, “it depends.” For some people, having a date is the first goal of their quit plan. They have time to prepare themselves and others for their quit. They can rid the house and car of all smoking paraphernalia, buy any pharmaceutical aids they need, and decide beforehand how to avoid and deal with cravings.

Some ex-smokers swear that picking a quit date wouldn’t have worked for them because it would have added even more stress to the process of quitting. Some people feel a sense of failure if they miss the quit date. Others use the quit date as an excuse to avoid quitting. They’ll set a quit date two weeks away, then as the date approaches, they move it back another two weeks. They tell themselves they need more time to plan, when they need to take action instead.

In the end, you have to decide what will work for you. In the end, it doesn’t matter if you quit on the first or the fifth of the month—you need to quit, and the time is now. If planning your life typically makes you more successful, pick a quit date, but don’t stretch it out more than two weeks. If setting a quit date will make you put off quitting, or if you feel motivated to do it now, seize the moment and get rid of the cigarettes.

Has setting a quit date ever worked for you? Why or why not?

Educate Yourself on Breast and Ovarian Cancer at the Annual Joining FORCEs Conference

Image to the left taken from FacingOurRisk.org.

For anyone concerned about hereditary breast or ovarian cancer, FORCE is hosting their annual Joining FORCEs Conference with Moffitt Cancer Center to educate individuals on everything from mastectomy options to genetic basics, and reconstruction options to menopause. This three-day international conference will provide attendees with valuable information and tips for cancer prevention and detection.

Attendees will also learn vital skills such as how to cope with cancer, how to make risk-management decisions, how to discuss cancer with family members, and so much more.

The event takes place from June 23 – 25 at the Hyatt Regency Grand Cypress in Orlando, Florida. And we are delighted to inform you that we’ll be attending the event and featured as one of the exhibitors. In addition to exhibiting, Dr. James Craigie will be on one of the reconstruction Q & A panels, and Dr. Richard Kline will be hosting a table at the Networking Breakfast. We hope to see you there!

See below for an amazing video from FORCE:

Click here to register for this amazing event!

What is an MRA and What is it For?

Dr. Richard M. Kline, Jr.

The below question is answered by Richard M. Kline Jr., M.D., of The Center for Natural Breast Reconstruction.

Why am I scheduled to have a MRA prior to my DIEP surgery? What is it and what is it for?

Preoperative imaging of perforating vessels by CTA (computerized tomographic angiogram) or MRA (magnetic resonance angiogram) is probably the most significant development in perforator flap breast reconstruction in the last 5 – 10 years.

Some of the potential advantages of preoperative imaging (with CTA or MRA) include:

1. Shortened operating time, due to knowing in advance where the desired perforating vessels are located.

2. Decreased damage to the rectus muscle, due to being able to select perforating vessels with the shortest intramuscular course. This is particularly important because it can decrease the chance of a major motor nerve to the muscle being divided. A few fortunate patients have an unusual anatomic situation in which a large perforating vessel actually goes between the two muscles, which can allow harvest with no damage to the muscle at all; this is instantly recognizable on preoperative imaging.

3. Decreased fat necrosis, due to being able to select the largest perforator.

4. Advanced recognition of those few cases when the SIEA, not the DIEP, might actually be the preferred blood supply for the flap (the same tissue would still be used)

5. Advanced recognition of those very rare instances where the deep inferior epigastric system has been divided form past surgery, or where all usable perforating vessels have been damaged by previous abdominal liposuction.

CTA has the advantage of being most readily available, but also exposes the patient to radiation. MRA does not expose the patient to radiation, but we have found that only a very strong MRI (3 tesla, or 3T) can give us images with enough detail to be really useful for preoperative planning. MRA still requires the administration of intravenous contrast agents, which can rarely have undesirable side effects. On the horizon is MRA without the need for any injection—it’s not quite here yet, but its coming.

We are very fortunate to work with a very skilled group of radiologists with a 3T MRI who are very interested in and skilled at obtaining images for our breast flap patients. We obtain preoperative imaging on all patients preoperatively, whether they are scheduled for a DIEP or GAP flap. If a patient has a contraindication for an MRI / MRA (ferrous metal implanted in the body is the most common), then we obtain a CTA.

—Dr. Richard M. Kline, Jr.

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Important Self-Exams Every Woman Should Perform

Image to the left taken from Cancer.org.

 

Self-exams help you to detect changes in your body between visits to your doctor. Many lives have been saved due to diligent self-examination, and following are two self-exams you’ll want to perform regularly.

BSE or breast self-exam

Each woman has her own method of examining her breasts. Some do a systematic BSE monthly or bimonthly, while others keep an eye on their breasts by regularly feeling them in the shower or while lying in bed. Often, women ask their significant others to help them check, or they visit the doctor several times a year for a clinical exam.

While a regular BSE with a consistent technique is best, perfect technique is not as important as frequency and diligence. Sometimes, women stress needlessly about doing it correctly. As long as you feel the entire breast and overlap your motions, you’re doing it right. The goal of a BSE is to know what is normal for you and check for changes.

If you’re not sure whether you’re feeling the entire breast, cancer.org suggests the following BSE routine:

  • Lie down and bend your arm behind your head to spread the breast tissue evenly over your chest, making it easier to examine.
  • Imagine your breast is divided in vertical lines from your underarm to breastbone, and use the finger pads of your other hand to feel for lumps in an up-and-down pattern along those lines. Move in dime-sized circles, slightly overlapping the previous line as you move up and down.
  • Use different levels of pressure at each spot so you feel all the breast tissue, especially if you have large breasts. You can feel the tissue close to the skin with light pressure, tissue in the upper half of the breast with medium pressure, and lower breast tissue with deeper pressure. There will be a ridge at the bottom of each breast, which is normal. If you have questions about pressure, talk with your doctor or nurse.
  • Examine the entire breast area, and then repeat the exam on your other breast.
  • Stand in front of a mirror, press your hands on your hips, and look at your breasts for changes in shape or size. Also look for rashes, redness, or dimpling.
  • Raise each arm slightly, and feel the underarm for lumps.

Some women may find it easier to examine their breasts in the shower, which is fine, as long as you are thorough—or add this routine to your shower exam. Current medical literature suggests that the above procedure is the most effective for finding lumps as soon as possible.

Skin exam

A regular skin exam will help you keep an eye on moles, freckles, and other spots that could become cancerous. It should be done at least once a month, and if you ask your doctor to do a full-body exam first, you’ll have a baseline. While it may sound daunting, after you’ve done a full skin exam a couple of times, it shouldn’t take more than 10–15 minutes.

Warning signs of skin cancer include a change in an existing mole or spot, or any growth or spot that . . .

  • Appears during adulthood.
  • Increases in size or thickness.
  • Changes in texture or in color—especially if it turns pearly, multicolored, brown, or black.
  • Has an irregular shape or outline.
  • Is bigger than a pencil eraser.
  • Continues to hurt, itch, scab, or bleed longer than three weeks.

If you see any of these signs, don’t wait or hope it goes away. See a doctor, preferably a dermatologist.

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How Long Should I Wait to Have a DIEP Flap After Radiation?

Dr. James Craigie

The below question is answered by Dr. James Craigie of The Center for Natural Breast Reconstruction.

How long should I wait to have a DIEP flap after radiation?

Radiation therapy is part of the treatment of breast cancer and will affect the results of breast reconstruction. The treatments can miraculously kill some growing cancer cells but they also change the area of the body left behind after surgery.

All of the elements of the body can be affected: blood vessels, scarring, healing function, and appearance.  The effects of radiation occur in two phases. Short term occurs during and immediately after the treatments. Elective surgery at this time is not possible, for obvious reasons. The long term effects develop after the early “burn-like” injury “settles down.” The long term reaction occurs for approximately the first six months.

The experience can be widely different from one person to the next. We have experienced difficulties with the receiving blood vessels after radiation when we did not wait for the body to recover from both long and short term damage. These types of problems could possibly increase the chance for the new breast to fail. Avoiding these problems may be possible by waiting and that is why the long recovery is needed before reconstruction is started.

—Dr. James Craigie

Spread the Word about the 2011 Women’s Empowerment Conference

womens healthWe are delighted to spotlight the upcoming 2011 Women’s Empowerment Conference hosted by the Women’s Empowerment Group on May 21, 2011 at the Technical College of the Lowcountry, Beaufort Campus, Beaufort, SC, happening at 8:00 a.m. – 3:00 p.m.

Dedicated to educating and assisting women to live “Healthier Lives Through Education,” the Women’s Empowerment Group has created their very first Women’s Empowerment Conference for all women of the Lowcountry to attend. In an effort to educate women and young females about common health issues, the conference will work to educate females about heart disease, cancer, diabetes, stroke, and chronic diseases. Attendees may also receive HIV tests, as well as breast exams.

Throughout the day at the conference, there will be a variety of breakout session topics, including . . .

Dream Big, Live True: This is an entrepreneurial workshop hosted by Elizabeth Millen, editor and publisher of Pink Magazine.

Breast Health 101: This workshop will focus on what females can do to take care of their breasts and work to prevent breast cancer. The workshop will be hosted by Lucy Spears, a mission / coordinator survivor.

Sexy Senior: This workshop will focus on sex throughout life and will be hosted by Gwen Bampfield, JD.

Fats: The Good, Bad and the Ugly: Hosted by Sarah Smith, RD, LD, CDE, this workshop will focus on how to prevent chronic diseases.

Your Body is Your Temple: This discussion will focus on how to nourish the body and soul, and will be hosted by Gina Jordan, MD.

Sexual Health: With a focus on women’s sexual health issues, this workshop will be hosted by Ardra Davis-Tolbert, MD.

Teen Conference: This discussion will focus on a broad range of health topics for teenagers ages 13 – 18.

The event will also feature health screenings, door prizes, fitness demonstrations, heart health discussions, snacks and beverages, and giveaways.

**Since seating at the event is limited, please pre-register prior to Saturday, May 14. Registration is completely free. Click here to fill out your pre-registration form.

Spread the word and bring your daughters, mothers, grandmothers, and girlfriends for a day of fun and health education you’ll always remember.

For more information, click here to visit the Women’s Empowerment Group website.

How to Talk to your Spouse about Health Concerns without Scaring Him

health concernsYou need to talk to your husband about your health, but it scares him when you bring it up. You need to have a strategy for talking to him. You can’t stop him from fearing for you—he loves you and wants you healthy and safe—but you can minimize his anxiety with a few simple tips.

Be clear on what you need to tell him at this point.

One of the worst things you can do is to throw a worst-case scenario at him from the start. That would unnecessarily scare anyone. If you’ve found a lump, tell him you’re going to have it checked out. Answer his questions, but don’t put thoughts in his mind that don’t need to be there at this time.

Have the facts in front of you, and keep it short and to the point.

Men often respond better when they can see the facts. Show him studies, doctors’ websites and blogs, WebMD—anything that clearly states the facts so he can see for himself. Practice what you’re going to say, and focus on being clear and succinct.

When you talk to him, get right to the point and then stop. If you ramble, his attention may wander, or he may tune you out right when you need him to listen. Ask him if he has any questions, and answer them honestly—but again, keep it short.

Try to keep your emotions in check during the discussion.

When women are upset or crying, their husbands feel powerless and unable to solve the problem, so they become frightened and angry. If you can hold your emotions just until you’ve finished telling him what you need to, he’ll hear you more clearly.

We’re not saying you need to stifle your emotions, but give him a chance to hear and comprehend what you’re saying without becoming frightened because you’re upset.

Have the doctor explain it to him.

If you’re not comfortable talking to him, or you think he might have questions you can’t answer, have the doctor call him at home. If you take him to the doctor with you, his mind will run wild while you’re in the waiting room, and he’ll scare himself. Leave the room while he’s on the phone, and do not have the doctor call him at work unless it’s good news.

Give him time to process.

After you’ve talked to him, go to another room for a while to let him sort through his thoughts. He needs time to process what you’ve told him, and he needs to be alone. Tell him to take his time. It might be five minutes or five hours, but give him the time he needs.

What strategies have you used when talking to your husband about your health?

A Journey You Don’t Have to Take Alone

breast cancer survivor

Shirley's book cover

Dear Sister in this Journey,

My name is Shirley. I have just undergone a double mastectomy and breast reconstructive surgery as a result of having breast cancer. I am one of the fortunate ones who did not have to endure chemotherapy, as well.

My cancer was in my left breast, but I chose to have a double mastectomy to mitigate future risk of recurrence.  Based on the reputation and firsthand knowledge I had of Dr. Kline and Dr. Craigie, I chose the Center for Natural Breast Reconstruction to take care of my small, but precious bosoms.

Once the decision was made to move forward with bilateral DIEP reconstruction surgery, I was given a patient handbook that provided information about what to do pre and post surgery. No offense to the medical team that put together a technically comprehensive document, but boy did they leave out a lot of information that would have been helpful! The kinds of things that, really, only a patient would know.

So, I thought I’d write about my personal experiences to share with others—maybe it will help those who are about to undergo a DIEP reconstruction procedure to be more prepared and know more about what to expect. If you would like a copy of my booklet, get in touch with the center at www.naturalbreastreconstruction.com, they’ll be happy to give you one.

It’s all from my perspective and I hope it helps in understanding what will happen. And I hope it helps keep others positive as they face the surgery.

Good luck on your Journey!

Most sincerely,

Shirley Trainor-Thomas

Breast Cancer Survivor

Hodgkin’s Lymphoma Survivor

Reconstruction Success Story

Did you find Shirley’s story inspirational and know of others who will? Share it with your friends on Facebook.

A Look at the Second Annual Warriors Wear Pink MoBo Event

Guest post by Lee Heyward, owner of the Charleston Style Concierge.

Lee attended the Second Annual Warriors Wear Pink MoBo Event, and was one of the speakers.

See below for Lee’s guest post:

Last week I was honored to be a part of the 2nd Warriors Wear Pink MoBo, where shopping was not only fun, but went to a great cause.  Attendees shopped through a great selection of designer denim, fun accessories, and great spring wardrobe updates to benefit local “warriors” fighting breast cancer. I had the privilege of helping shoppers find and put together great spring outfits.

warriors wear pinkImage to the left of Lee Heyward at the Warriors Wear Pink MoBo Event.

The MoBo was a great way to add fun spring wardrobe updates on any budget. I always teach my clients to keep an open mind when shopping because you never know what you are going to find, and the MoBo was the place to find so many great deals. Shopping here was a fun way to add new pieces to your wardrobe while benefitting an amazing cause.  Pictured here are a few of the many MoBo racks.

Below are images taken at the event of some of the clothing, jewelry, and shoe racks:

breast cancer events

charleston style concierge

Charleston personal stylist

I’m so honored to have had the opportunity to become involved with the Warriors Wear Pink organization. After speaking for only a few minutes with Leslie Moore, the organization’s founder, I had chills and knew I wanted to help however I could. Leslie is a breast cancer survivor and founded Warriors Wear Pink to give other pink warriors inspiration, hope, advice, and a community to reach out to.

breast cancer awareness

For more information about Warriors Wear Pink visit the Warriors Wear Pink Promise Blog or get involved with them on Facebook.  I hope to see you at the next Warriors Wear Pink MoBo!

To find out more about Lee and the Charleston Style Concierge, click here to visit her website.